Photos: then and now

I have photos of my daughters all over the house.

Over the years I have not been able to take out old photos to add newer, updated photos as I’ve noticed many families do.

I just keep buying more and more frames, when I see them on sale (or at Wal-Mart where they are always $4 and $5), and display more photos. I don’t know if the way I place them around the house is in acceptable decorator fashion. All of the frames are mismatched!  I think some might say that my home is cluttered with too many photos. Oh I also have a message board upon which I just stick photos all over.

I just love to look at their faces, recall the memories, the feelings, the love of  when they were babies, toddlers, pre-teens, holiday photos,  their cute “little girl” clothes (when they let me dress them up). They will never ever be those little girls ever again. The photos always bring me peace and joy.

But something odd has happened in recent weeks, given Abby’s new and unpredictable medical condition. I look at these same photos that I have had up and around my house for years in a weird category now. I do not even do this on purpose, it is just this weird thought that now pops into my head when I look at these photos.

Pre-seizures.

You cannot control your mind or control thoughts that come in and out at any given moment. And this is one thought that now pops in on a whim.

I look at Abby’s face and see her as a baby, toddler, pre-teen and she has no, real problems, fears or medical issues to be concerned with. I see photos and think my only worry then was if she’d catch another annoying cold or ear infection.

I also find myself now wondering when I look at these photos, did I miss something back then? Was she displaying any type of seizure activity back then, that I didn’t catch or recognize. Did I drop the ball? Was I not as good and attentive to her as I thought I was? Could I have done better for her?

Was there ever a night back then in those days when she had a seizure in her sleep and I didn’t hear her? The doctor says it’s possible. He also says not to dwell on such thoughts. Easy for him to say.

I am in a place I never thought I’d be. I have thoughts that I never thought I’d have. I could never imagine the fear for my child that I now live with.

A friend of mine has a friend whose daughter just died from cancer. She was young, I don’t think she was even 13 yet. My friend said that her friend, the girl’s mom, says the same things about her family photos. There are photos that are pre-cancer. This poor woman lost her daughter to the ugliness, the evil that is cancer. She never suspected when her daughter’s baby pictures were being taken, she’d one day look at them and feel such sadness and loss.

I’m trying not to write so much about Abby’s medical issues, but I have to admit it is hard. It is the only thing I think about. The only thing I seem to care about right now. And I don’t think it would be authentic for me to have a blog, ask you all to support me and ignore what is really in my heart at this time. I struggle whether it is right for me to share this part of our lives with you all. But, just know I am sharing these thoughts with Abby’s permission and my family’s support.

If I can ask you to take away one thing from these blogs about Abby’s seizures, it is to appreciate the small, predictable, manageable issues in life. Don’t sweat the small stuff!

I welcome your comments.

Until next time, love each other…..

Simple securities now gone ….

Hi dear friends, family and followers, please visit Bittersweet over at ChicagoNow and share a short little ditty I wrote expressing feelings of loss and regret in light of our daughter’s recent health issue. As always, your thoughts and insight mean so much to me and I’d love anything you’d like to share.

Until next time……

http://www.chicagonow.com/bittersweet/2013/03/what-id-give/

Still holding my breath ….

Our lives have been flipped upside down in recent weeks. I wrote a post over on Chicago Now Bittersweet.com about what has been going on in our lives here at home. My daughter’s medical issue has consumed me and fear has taken over. But she is strong and full of surprises and she amazes me. So please visit and share your thoughts. In case anyone is concerned that maybe I should not have written about her, I asked her if it was OK and she said it was. See, she amazes me!

http://www.chicagonow.com/bittersweet/2013/03/when-my-world-shakes-my-heart-breaks/

Until next time….